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Tips and Tricks

This is how I explain my Invisible Illness

Posted by tinaadmin on
This is how I explain my Invisible Illness

This post was updated on 27/07/18

Invisible disability, or hidden disability, is defined as disabilities that are not immediately apparent. Although the disability creates a challenge for the person who has it, the reality of the disability can be difficult for others to recognise or acknowledge. Others may not understand the cause of the problem, if they cannot see evidence of it in a visible way. This can make it tricky for those of us who live with a chronic illness.

My symptoms vary in severity from week to week, day to day or even per hour sometimes. I find that really frustrating when I don’t know how much I can do in a day etc, however I am very aware that someone might look at me, think I look healthy and not understand why I say I can’t drive, make an arrangement or have to leave early. Knowledge is power as they say, so I thought it would be useful to write about how I explain my invisible illness.

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Modern Day/Project GTF (MInd, Body and Soul)

Project Get Tina Fit-The Approach for Success

Posted by tinaadmin on
Project Get Tina Fit-The Approach for Success

I don’t know how many times I’ve started a weight-loss plan, some with more success than others. However here I am, needing to lose weight again! Losing weight is hard. Losing weight when you have are chronically ill? Hmmm. I’ve gone round and round in circles and seem to fall off the bandwagon when I have a symptom flare. I need an approach for success, that will work for me all the time; symptom-free and flare ups.

So what’s my approach?

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Health/Modern Day/Tips and Tricks

Tips for Travelling with a Chronic Illness

Posted by tinaadmin on
Tips for Travelling with a Chronic Illness

This post was updated on 29/06/18

We’re at that time of year when you are likely to be thinking about your summer holiday. I am lucky enough that I have three trips that i am looking forward to in the next few months. So I am starting to think about what I can put in place to travel with a chronic illness: manage my symptoms and ensure I have a wonderfully relaxing time. I am sure many others would benefit from this too, so decided to blog about it. I wanted to keep this post quite general, so will apply to more people. So I’ve had a little help from others with a chronic illness. Where they are a fellow blogger, I have included a link to their blog or social media.  

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The Journey

The answer to my weird and wonderful symptoms

Posted by tinaadmin on
The answer to my weird and wonderful symptoms

Retrain Brain and Simply-Shine - The Answer to the Symptoms

This post was updated on 24/03/18

This is the next instalment in my The Journey section. To read the previous posts, click here.

Monday 29th April 2013- That’s a date that will remain in my memory for a long time.

The day of my neurologist appointment. First of all, as strange as this might sound, I was lucky to get this far so quickly. There are so many people who have weird and wonderful symptoms as I called them, that push to see a specialist but get no where. I know what it is like to have a GP who doesn’t understand. Who has no answer for the symptoms and so makes suggestions only for them not to work. From January to March 2013 I went back and forth to the GP. For other people reading this who have been through something similar, I know that 3 months is a relatively short length of time and for that I am very lucky.

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Modern Day/Wellbeing Wednesday

How My Wellbeing Review Left Me Emotional

Posted by tinaadmin on
How My Wellbeing Review Left Me Emotional

Retrain Brain and Simply-Shine - Hello March

This post was updated on 24/03/18

Today is my Wellbeing Wednesday! The first Wednesday of the month where I share my plans for my wellbeing for the month ahead. I’ve recently set up a new format for this, you can read more about this here.

Well before I delve into the categories I should mention that I have set a challenge for March. #3forMe March Self-Care Challenge is about carrying out 3 self-care activities every day.  It is too easy to get caught up in the day to day and not spend time looking after your mind, body and soul. This challenge keeps me accountable to do just that.

I am so excited that a number of people are also taking part in both Shine in Self-Care Facebook group and Instagram. I am on a mission to get as many people taking care of themselves more. If you would like to get involved, click on either link above.

Otherwise read on to see what March wellbeing looks like for me.

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The Journey

Scary Reflections from my FND Symptoms Diary

Posted by tinaadmin on
Scary Reflections from my FND Symptoms Diary

Retrain Brain and Simply-Shine - FND Symptoms Diary

This post was updated on 24/03/18

I was keen to understand what was happening so I started keeping a symptoms diary

I looked out for patterns. What was I doing before symptoms started? Was it a particular time of day? I’ve included below an extract of that diary. It was really difficult to select which dates to include, in order to fully describe what I went through. However, in the interest of you not falling asleep, I’ve kept it as brief as I can.

Saturday 16th March 2013
Started personal training at the gym and felt ok, just a little tired. 20 minutes into the session I felt dizzy and spaced out. Sat down and drank water, very tired. Couldn’t sit up properly or keep my eyes open for very long.

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