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Tips and Tricks

This is how I explain my Invisible Illness

Posted by tinaadmin on
This is how I explain my Invisible Illness

This post was updated on 27/07/18

Invisible disability, or hidden disability, is defined as disabilities that are not immediately apparent. Although the disability creates a challenge for the person who has it, the reality of the disability can be difficult for others to recognise or acknowledge. Others may not understand the cause of the problem, if they cannot see evidence of it in a visible way. This can make it tricky for those of us who live with a chronic illness.

My symptoms vary in severity from week to week, day to day or even per hour sometimes. I find that really frustrating when I don’t know how much I can do in a day etc, however I am very aware that someone might look at me, think I look healthy and not understand why I say I can’t drive, make an arrangement or have to leave early. Knowledge is power as they say, so I thought it would be useful to write about how I explain my invisible illness.

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The Journey

The answer to my weird and wonderful symptoms

Posted by tinaadmin on
The answer to my weird and wonderful symptoms

Retrain Brain and Simply-Shine - The Answer to the Symptoms

This post was updated on 24/03/18

This is the next instalment in my The Journey section. To read the previous posts, click here.

Monday 29th April 2013- That’s a date that will remain in my memory for a long time.

The day of my neurologist appointment. First of all, as strange as this might sound, I was lucky to get this far so quickly. There are so many people who have weird and wonderful symptoms as I called them, that push to see a specialist but get no where. I know what it is like to have a GP who doesn’t understand. Who has no answer for the symptoms and so makes suggestions only for them not to work. From January to March 2013 I went back and forth to the GP. For other people reading this who have been through something similar, I know that 3 months is a relatively short length of time and for that I am very lucky.

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Modern Day

How I went from collapse to conquer with my health

Posted by tinaadmin on
How I went from collapse to conquer with my health

Retrain Brain and Simply-Shine - Collapse to Conquer

This post was updated on 24/03/18

For the last 10 days or so, I’ve had a flare up of symptoms, which includes

  • Weakness in legs
  • Difficulty standing, walking
  • Drop falls
  • Severe tiredness; struggling to keep eyes open and speech slurred.

When I’ve felt like this, I’ve had little option but to rest. I haven’t had the brain power to do anything else. There is no doubt that having a flare up is frustrating etc. No one is going to enjoy them.  I had to cancel or change plans, including going to a birthday party of a good friend. Well there is never a good time to be ill though is there. So rather than dwell on it and think life is on hold, I acknowledge how I am feeling and accept it means I need to rest. That’s not wasting time. It is exactly what I need.

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