The Journey


<span class="dojodigital_toggle_title">The Journey</span>

This post was updated on 11/06/18

The Journey

The answer to my weird and wonderful symptoms

Posted by tinaadmin on
The answer to my weird and wonderful symptoms

Retrain Brain and Simply-Shine - The Answer to the Symptoms

This post was updated on 24/03/18

This is the next instalment in my The Journey section. To read the previous posts, click here.

Monday 29th April 2013- That’s a date that will remain in my memory for a long time.

The day of my neurologist appointment. First of all, as strange as this might sound, I was lucky to get this far so quickly. There are so many people who have weird and wonderful symptoms as I called them, that push to see a specialist but get no where. I know what it is like to have a GP who doesn’t understand. Who has no answer for the symptoms and so makes suggestions only for them not to work. From January to March 2013 I went back and forth to the GP. For other people reading this who have been through something similar, I know that 3 months is a relatively short length of time and for that I am very lucky.

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The Journey

How Being Really Vulnerable Resulted in my Diagnosis

Posted by tinaadmin on
How Being Really Vulnerable Resulted in my Diagnosis

Retrain Brain and Simply-Shine - Vulnerable to Diagnosis

This post was updated on 24/03/18

This is the next instalment in The Journey series. To read the previous post in this series, click here

As the title suggests, my symptoms on that day were the worst they had been so far. I felt helpless, vulnerable and at the time I had no idea what was happening and why. Read on to see what happened and why I am actually really grateful it did and how it led to my diagnosis

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The Journey

Scary Reflections from my FND Symptoms Diary

Posted by tinaadmin on
Scary Reflections from my FND Symptoms Diary

Retrain Brain and Simply-Shine - FND Symptoms Diary

This post was updated on 24/03/18

I was keen to understand what was happening so I started keeping a symptoms diary

I looked out for patterns. What was I doing before symptoms started? Was it a particular time of day? I’ve included below an extract of that diary. It was really difficult to select which dates to include, in order to fully describe what I went through. However, in the interest of you not falling asleep, I’ve kept it as brief as I can.

Saturday 16th March 2013
Started personal training at the gym and felt ok, just a little tired. 20 minutes into the session I felt dizzy and spaced out. Sat down and drank water, very tired. Couldn’t sit up properly or keep my eyes open for very long.

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The Journey

What happened when I went from Busy Bee to Rag Doll

Posted by tinaadmin on
What happened when I went from Busy Bee to Rag Doll

Retrain Brain and Simply-Shine - Busy Bee to Rag Doll

This post was updated on 24/03/18

Sunday 20th January 2013

We were going into London for a family lunch (the two of us). It is likely I was rushing around to get ready-not sure now. I do remember however, that when I got in the car I flopped forward. It was like someone switched off my energy level, to the extent that I was in a rag doll state.

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